In January of 2020 we launched the Lily Calvert Musical Care Training program in partnership with Very Special Kids Hospice in Malvern. Designed to train health care professions, carers and volunteers in paediatric palliative care, the program aimed to teach participants to incorporate elements of music therapy into their daily care of children with life…
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A national Music Therapy Kits Program in partnership with Tiny Tones Musical Instruments delivering to hospitals and hopsice programs across Australia and NZ
‘Music can change the world’ Music. It can’t cure illness, but it can change the world -through sparking joy, love, interaction and pain relief. Music therapy changed Lily’s world and ours. It gave her so much joy, ways to communicate us and memories we will carry for a lifetime without her. That is why we…
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Surviving the festive season when your child has died
If you have lost a child, Christmas can be a brutal reminder of how things should have been. I have survived two Christmases without my Lily. The first was awful. The second almost worse because I was worried people would assume we were ‘over it’. This third one, I am trying to find the balance…
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Lily’s first seizures
In the hospital ER with Lily undergoing an EEG Would you be able to spot a seizure? When Lily was diagnosed we were told to expect seizures would occur if not from birth, it would happen eventually. It was a done deal. The closest I had come to epilepsy before that was knowing one or…
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Are you still using the ‘R’ word?
You are a retard. I remember when I was in primary school way back in the early 90’s, that word flowed off the tongue without a second thought. Everyone used it. I never paused to think about its true intent. Maybe I still wouldn’t have given it a second thought if I hadn’t had…
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Our beautiful T-shirt collaboration with Original Ground
We are so proud to have partnered with Original Ground, a beautiful active wear company which offers a selection of Organic Cotton apparel ethically produced from the ground up. Eloise is the Founder of Original Ground. Her passion for organic and natural clothing came from the desire to purchase good quality, staple items, that won’t…
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Speaking about Lily at the Royal Children’s Hospital Memorial Day 1 August 2019
Below is the speech that Priyanka gave at the Royal Children’s Hospital memorial day. The theme of the event was ‘all the colours of my day’ and speakers were asked to include the theme into their talk. This is Lily. She was born on 7 September, 2016. Isn’t she beautiful. I want to stop…
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Lily’s Sydney Fundraiser at Wylie’s Baths was a roaring success!
On 31 August 2019, 130 party goers and Lily Calvert Foundation Supporters headed to the spectacular Wylie’s Baths in Coogee. A marquee perched above the beautiful tidal pools greeted guests who entered through an abundant archway of flowers put together by clever Rachel O’Donnell and donated in large part by Sydney florist, The Wilds.…
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Lily goes live on national tv
On Thursday 1 August I went live on Channel 7’s Daily Edition to talk about Lily and the Foundation When my lovely friend Alice approached me about speaking on national TV to talk about Lily I was so excited and nervous. I couldn’t think of better way to spread the word of our girl and…
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Talking about Lily’s diagnosis on national TV
On Thursday 1 August 2019 I went live on national TV to talk about our girl and our journey through love and loss to creating Lily’s legacy. It is safe to say I was very nervous at the thought of talking about Lily to the nation. If I am honest, I’ve always hated talking about…