• Lily’s first seizures

    In the hospital ER with Lily undergoing an EEG   Would you be able to spot a seizure? When Lily was diagnosed we were told to expect seizures would occur if not from birth, it would happen eventually. It was a done deal. The closest I had come to epilepsy before that was knowing one or…

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  • Are you still using the ‘R’ word?

      You are a retard. I remember when I was in primary school way back in the early 90’s, that word flowed off the tongue without a second thought.  Everyone used it. I never paused to think about its true intent. Maybe I still wouldn’t have given it a second thought if I hadn’t had…

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  • Our beautiful T-shirt collaboration with Original Ground

    We are so proud to have partnered with Original Ground, a beautiful active wear company which offers a selection of Organic Cotton apparel ethically produced from the ground up. Eloise is the Founder of Original Ground. Her passion for organic and natural clothing came from the desire to purchase good quality, staple items, that won’t…

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  • Speaking about Lily at the Royal Children’s Hospital Memorial Day 1 August 2019

    Below is the speech that Priyanka gave at the Royal Children’s Hospital memorial day. The theme of the event was ‘all the colours of my day’ and speakers were asked to include the theme into their talk.    This is Lily. She was born on 7 September, 2016. Isn’t she beautiful. I want to stop…

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  • Lily’s Sydney Fundraiser at Wylie’s Baths was a roaring success!

      On 31 August 2019, 130 party goers and Lily Calvert Foundation Supporters headed to the spectacular Wylie’s Baths in Coogee. A marquee perched above the beautiful tidal pools greeted guests who entered through an abundant archway of flowers put together by clever Rachel O’Donnell and donated in large part by Sydney florist, The Wilds.…

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  • Lily goes live on national tv

    On Thursday 1 August I went live on Channel 7’s Daily Edition to talk about Lily and the Foundation When my lovely friend Alice approached me about speaking on national TV to talk about Lily I was so excited and nervous.  I couldn’t think of  better way  to spread the word of our girl and…

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  • Talking about Lily’s diagnosis on national TV

    On Thursday 1 August 2019 I went live on national TV to talk about our girl and our journey through love and loss to creating Lily’s legacy.  It is safe to say I was very nervous at the thought of talking about Lily to the nation. If I am honest, I’ve always hated talking about…

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  • LCF’s donates $1000 to Rainbow Place in NZ after Christchurch school fundraiser

    On November 23, Lily’s nephews in New Zealand held a ‘mufti’ or plain clothes day at school to raise money for LCF. Inspired by the two (slightly) older cousins in Tasmania who held the first school fundraiser – Wear White for Lily Day at their school on 19 December in 2017  -the two younger boys…

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  • Sydney Winter Party

    Get ready for Sydney’s party of the year. We are thrilled to announce our partnership with Wylie’s Baths in Sydney and the first of what we hope to be many more fundraiser events at their stunning venue.  Join us for a winter party to raise money for the Lily Calvert Foundation, in the marquee perched…

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  • Lily’s Story part 1

      ‘I’m sorry I cant see the baby’s brain development on the ultra sound.’     I had a normal pregnancy until 36 weeks. We got the all clear from the 10 week NIPT test (aka the harmony test), the 12 week and 20 week scans. There were no warning signs. It would be accurate to…

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